Coraline had an ok day. She needed her forth blood transfusion, and has been really touchy.
Her new thing is kinda holding her breath, sometimes when we are fussing with her and sometimes for no reason at all. If she decides to stretch or gets angry she often bears down and you can see her close off her airway for a second when the vent isn’t getting any air in. Then you watch her oxygen level desaturate and then go back up. Good times.
She is getting some lasix today since the blood is a bunch of fluids, and they held feedings during her transfusion so she may be a bit lighter at tonight’s weighing. She did hit 1100g (2lb 7 oz) yesterday though so that is pretty outstanding… 8 oz in as many days!
Happy new year friends! We are looking forward to 2013 and hope for easier days for Coraline ahead!
Hello! Another snowy afternoon at the hospital, and Coraline got a new vent tube. She’s been growing REALLY well this week. When they had to re-intubate her 8 days ago she wasn’t big enough for the next larger airway tube, which was unfortunate because the smaller one was/is too small to maintain a good seal. She’s grown an inch or two and almost half a pound since then, and she is currently 1050 grams! We were hoping for 1000g by New Year’s Day so this was pretty great.
Her new tube is sealing well, and they are weaning her back down to lower oxygen supplement. I’m hoping she can get back to 21% (room air) shortly. If she keeps growing and needing less O2 supplement, hopefully she can move back to the Nasal IMV or the like in a week or so. Her poor little cheeks are red from getting tape pulled off them and having it re applied, but she is otherwise looking great and comfortable. We’ll get to do kangaroo care tomorrow.
The nurses are great today as usual, but at this point that’s pretty much been every day.
The post christmas snow unfortunately kept us at home and away from the hospital yesterday. This morning we shoveled out and managed to make it off of our street which hadn’t been plowed yet, though the rest of the drive was just fine.
Coraline was a handful yesterday! She apparently pulled her feeding tube out four times for the day shift, and at least once for the night shift. She hasn’t managed to do so today, but apparently is strong enough to manage to get her head facing the other way and shift around when she’s on her belly. Just one more thing for them to watch out for since she can (and did) kink her feeding tube off when she does turn her head the other way, though I like that she is strong enough to do so. She looks bigger every day, and her blonde hair keeps getting longer! I swear she looks way longer… I usually press my cell phone against the canopy to try to take a picture without glare, and today I couldn’t get her whole body in the picture. The hugest tiny baby.
As of last night she weighed 950g, or 2 lbs 1.5 oz. That’s 2 oz heavier since christmas eve… crazy. Her belly looked a little distended again this morning, I’m not sure what’s up with that, but things continue to move.
Nothing else to report on Coraline.
I will say our neighbors and friends continue to overwhelm with the niceness. I’ll see if I can enumerate all the awesome (I’m sure I’ll forget 12 things) in just the last couple weeks.
- A neighbor hung a lovely wreath on our door (good thing too because we didn’t have time to decorate at all this year), and left snacks.
- A friend stopped by the hospital with an epic Target run of seriously 6 bags of snacks and magazines etc. Amazing.
- We had white chicken chili delivered to the hospital.
- We’ve gotten some really nice gift certs for dinner out around here.
- Friends helped me clean out the garage and most of the basement.
- We’ve got a stocked freezer full of all kinds of good stuff that we’ve been working on… cheesy potatoes, cookies, minestrone, pasta, lasagna, casseroles. Yep.
- Our walk and sidewalk was shoveled and snow blown!
- We were taken to lunch and a movie.
This doesn’t even include all the family support we’ve received, as well as the assistance we’ve gotten via Coraline’s ChipIn Page Kristen setup. It really is so very nice.
We had a great Christmas with Erin’s family this morning, and have been spending some time with Coraline since then.
She is good today! Same old with the leaky seal, desats every once in a while. She is handling larger feedings ( and their :ahem: disposal) quite well. She looks bigger every time we are here and her blonde hair is growing!
We opened a gift left for us by a parent who had a preemie in this room 4 years ago over Christmas. The card and gift were very touching.
A blizzard is supposed to roll in tomorrow and I’m not sure if we will be able to make it here to visit. We shall see.
And now… Sleeping Christmas baby!